Your one point of contact for Actelion services and support
Resources
PAH Pathways Interactive Resource Locator
PAH Pathways offers a wealth of resources including one-on-one support from PAH Pathways counselors in your area.
Learn more »
Where to turn for additional support
PAH Pathways is the one-stop resource for patients on Actelion PAH therapies. Other resources are also available to patients with pulmonary arterial hypertension (PAH) who may be looking for information and support. Below is a listing of some valuable resources you should know about:
Your support team: Partnering with you to support you on your journey are important members of your healthcare team (physicians, nurses, PAH Pathways, and specialty pharmacies) as well as family members and caregivers.
Advocacy groups/online support groups/associations*
Adult Congenital Heart Association (ACHA): A nonprofit organization, which seeks to improve the quality of life and extend the lives of adults with congenital heart defects.
Caring Voice Coalition: A national 501 (c) (3), nonprofit, independent third-party charitable organization serving the comprehensive needs of individuals affected by serious, chronic diseases.
International Scleroderma Network: A full-service, nonprofit and the world’s #1 scleroderma site for patients and physicians alike.
Lupus Foundation of America: A nonprofit voluntary health organization dedicated to finding the causes of and a cure for lupus, which is an autoimmune disease that can affect various parts of the body, including the skin, joints, heart, lungs, blood, kidneys and brain.
National Heart, Lung, and Blood Institute: Provides leadership for a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders.
PAH-info.com: Site for both patients and physicians, providing detailed information about PAH.
PH Central: An internet resource for PAH information and support for patients, caregivers, and medical professionals.
Pulmonary Hypertension Association: Dedicated to finding ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy, and awareness.
The Scleroderma Foundation: The national organization for people with scleroderma and their families and friends
* Groups and associations are independent, third-party organizations.
Tracleer is indicated for patients with pulmonary arterial hypertension (PAH) WHO Class II-IV.
Tracleer Important Safety Information
Because of the risks associated with Tracleer, this medication may be prescribed only by your doctor through the Tracleer Access Program. Liver damage: Tracleer can cause serious liver damage, including in rare cases liver failure and, in situations with regular liver testing, unexplained liver cirrhosis. So you must have a blood test to check your liver function before you start Tracleer and each month after that. Call your doctor right away if you have any of these symptoms of liver problems: nausea, vomiting, fever, unusual tiredness, abdominal (stomach area) pain, or yellowing of the skin or whites of your eyes (jaundice). Serious birth defects: Tracleer is very likely to cause serious birth defects. It is important not to be or to become pregnant while taking Tracleer and to have a pregnancy test before you start the drug and each month thereafter. It is very important for you to use reliable forms of birth control while taking Tracleer. Hormonal contraceptives should not be used alone because they may not be effective in patients taking Tracleer.
Do not take Tracleer with glyburide or cyclosporine-A, because they may increase your chance for side effects.
Please see full Prescribing Information, including BOXED WARNING and Medication Guide.
Ventavis is indicated for the treatment of pulmonary arterial hypertension (WHO Group I) in patients with NYHA Class III or IV symptoms.
Important safety information about Ventavis
Because it lowers your blood pressure, Ventavis may cause dizziness, lightheadedness, and fainting. With Ventavis, the most common side effects are reddening of the face caused by dilation of blood vessels (flushing), increased cough, low blood pressure (hypotension), headaches, nausea, spasm of the jaw muscles that causes trouble opening your mouth, and fainting (syncope); other serious adverse events reported with the use of Ventavis include congestive heart failure, chest pain, supraventricular tachycardia, dyspnea, peripheral edema, and kidney failure. Before you start taking Ventavis, talk to your doctor to make sure you understand the side effects you might get.
Please see accompanying full Prescribing Information.